All adults are presumed to have sufficient capacity to make decisions about their own medical treatment, unless there's significant evidence to suggest otherwise.
What is capacity?
Capacity is the ability to use and understand information to make a decision, and communicate any decision made.
A person lacks capacity if their mind is impaired or disturbed in some way and this means the person is unable to make a decision at that time.
Examples of how a person's brain or mind may be impaired include:
- mental health conditions – such as schizophrenia or bipolar disorder
- severe learning disabilities
- brain damage – for example, from a stroke or another brain injury
- physical or mental conditions that cause confusion, drowsiness or a loss of consciousness
- intoxication caused by drug or alcohol misuse
Someone with such an impairment is thought to be unable to make a decision if they can't:
- understand information about the decision
- remember that information
- use that information to make a decision
- communicate their decision by talking, using sign language, or any other means
How capacity is assessed
As capacity can sometimes change over time, it should be assessed at the time consent is required.
This will usually be done by an appropriately trained and experienced health professional who's either:
- recommending the treatment or investigation
- involved in carrying it out
If the health professional feels you have the capacity to give your consent, your decision will be accepted and your wishes will continue to be respected, even if you lose capacity at a later stage.
If the health professional feels you don't currently have the capacity to give consent and you haven't made an advance decision or formally appointed anyone to make decisions for you, they'll need to carefully consider what's in your best interests before making a decision.
Respecting personal beliefs
If someone makes a decision about treatment that other people would consider to be irrational, it doesn't necessarily mean they have a lack of capacity, as long as they understand the reality of their situation.
For example, a person who refuses to have a blood transfusion because it's against their religious beliefs wouldn't be thought to lack capacity.
They still understand the reality of their situation and the consequences of their actions.
But someone with anorexia who's severely malnourished and rejects treatment because they refuse to accept there's anything wrong with them would be considered incapable.
This is because they're regarded as not fully understanding the reality of their situation or the consequences.
Determining a person's best interests
If an adult lacks the capacity to give consent, a decision on whether to go ahead with the treatment will need to be made by the health professionals treating them.
To make a decision, the person's best interests must be considered.
There are many important elements involved in trying to determine what a person's best interests are.
- considering whether it's safe to wait until the person can give consent if it's likely they could regain capacity at a later stage
- involving the person in the decision as much as possible
- trying to identify any issues the person would take into account if they were making the decision themselves, including religious or moral beliefs (these would be based on views the person expressed previously, as well as any insight close relatives or friends can offer)
If a person is felt to lack capacity and there's nobody suitable to help make decisions about medical treatment, such as family members or friends, an independent mental capacity advocate (IMCA) must be consulted.
Involving the Court of Protection
In situations where there's serious doubt or dispute about what's in an incapacitated person's best interests, healthcare professionals can refer the case to the Court of Protection for a ruling.
This is the legal body that oversees the operation of the Mental Capacity Act (2005).
Situations that must always be referred to the courts include:
- sterilisation for contraceptive purposes
- donation of organs or regenerative tissue, such as bone marrow
- withdrawal of nutrition and hydration from a person who's in a permanent vegetative state or minimally conscious state
Changes in capacity
A person's capacity to consent can change. For example, they may have the capacity to make some decisions but not others, or their capacity may come and go.
In some cases, people can be considered capable of deciding some aspects of their treatment but not others.
For example, a person with severe learning difficulties may be capable of deciding on their day-to-day treatment, but incapable of understanding the complexities of their long-term treatment.
Some people with certain health conditions may have periods when they're capable and periods when they're incapable.
For example, a person with schizophrenia may have psychotic episodes (when they can't distinguish between reality and fantasy), during which they may not be capable of making certain decisions.
A person's capacity can also be temporarily affected by:
- extreme tiredness (fatigue)
Advance decisions and power of attorney
If a person knows their capacity to consent may be affected in the future, they can choose to draw up a legally binding advance decision (also known as a living will).
This sets out the procedures and treatments a person refuses to undergo.
You can also choose to formally arrange for someone, often a close family member, to have lasting power of attorney (LPA) if you want to make important decisions before you lose capacity at a later stage.
Someone with LPA can make decisions about your health on your behalf, although you can choose to specify certain treatments you'd like them to refuse in advance.